The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Des Moines, IA

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 21 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Des Moines, IA. Of these, 19 are Experienced and 2 are Advanced.

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21 providers found
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Advanced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Pediatric Cardiology P.C.

    330 Laurel St Ste 2200, 
    Des Moines, IA 
     (1.3 miles away)
    Languages Spoken:
    English

    Jill Shivapour is a Pediatric Cardiologist practicing medicine in Des Moines, Iowa. Dr. Shivapour is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Bicuspid Aortic Valve, and Congenital Mitral Malformation.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Mercy Clinics Inc.

    330 Laurel St Ste 1200, 
    Des Moines, IA 
     (0.6 miles away)
    Languages Spoken:
    English

    Amanda Jepson is a Pediatric Cardiologist practicing medicine in Des Moines, Iowa. Dr. Jepson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Heart Murmurs, and Patent Ductus Arteriosus.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)

    MercyOne Des Moines Medical Center

    1111 6th Avenue, 
    Des Moines, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Stephen Mooradian is a Pediatrics provider practicing medicine in Des Moines, Iowa. Dr. Mooradian is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), DiGeorge Syndrome, and Kawasaki Disease.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Occupational Health Center PC

    320 Watson Powell Jr Way, 
    Des Moines, IA 
     (0.3 miles away)
    Languages Spoken:
    English

    Edward Steinmann is a primary care provider, practicing in Family Medicine in Des Moines, Iowa. Dr. Steinmann is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Hypopituitarism, Panhypopituitarism, Growth Hormone Deficiency (GHD), and Hypogonadism.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Office

    1215 Pleasant St Ste 206, 
    Des Moines, IA 
     (0.4 miles away)
    Languages Spoken:
    English

    Ryan Tomlinson is a Pediatrics provider practicing medicine in Des Moines, Iowa. Dr. Tomlinson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Osteomyelitis in Children, and Obesity in Children. Dr. Tomlinson is board certified in American Board Of Internal Medicine and American Board Of Pediatrics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Unitypoint Clinic Internal Medicine-Methodist Plaza

    1221 Pleasant St Ste 200, 
    Des Moines, IA 
     (0.4 miles away)
    Languages Spoken:
    English

    Sarah Garner is a primary care provider, practicing in Internal Medicine in Des Moines, Iowa. Dr. Garner is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Cellulitis, Hemorrhagic Proctocolitis, Syndrome of Inappropriate Antidiuretic Hormone Secretion (SIADH), Endoscopy, and Bone Marrow Aspiration.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Neonatology | Medical Genetics | Obstetrics and Gynecology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Neonatology | Medical Genetics | Obstetrics and Gynecology

    Mercy Clinics Inc

    1111 6th Ave, 
    Des Moines, IA 
     (0.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jason Picconi is a Neonatologist and a Medical Genetics provider practicing medicine in Des Moines, Iowa. Dr. Picconi is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Ectopic Pregnancy, Preeclampsia, Premature Infant, and Placenta Previa. Dr. Picconi is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Neuromusculoskeletal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Neuromusculoskeletal Medicine

    Broadlawns Medical Center

    1801 Hickman Rd, 
    Des Moines, IA 
     (2.3 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Audra Ramsey is a primary care provider, practicing in Neuromusculoskeletal Medicine in Des Moines, Iowa. She has been practicing medicine for over 17 years. Dr. Ramsey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Pelvic Floor Dysfunction, Chronic Pain, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Ehlers-Danlos Syndrome (EDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    MercyOne Pleasant Hill Family Medicine

    5900 East University Avenue, Suite 100, 
    Pleasant Hill, IA 
     (6.6 miles away)
    Languages Spoken:
    English

    Steven Strang is a primary care provider, practicing in Family Medicine in Pleasant Hill, Iowa. Dr. Strang is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Tracheitis, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    MercyOne Norwalk Family Medicine

    9421 MarketPlace Dr., 
    Norwalk, IA 
     (7.0 miles away)
    Languages Spoken:
    English

    Michael Agey is a primary care provider, practicing in Family Medicine in Norwalk, Iowa. Dr. Agey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Chronic Obstructive Pulmonary Disease (COPD), Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    MercyOne Urbandale Internal Medicine

    4005 NW Urbandale Drive, 
    Urbandale, IA 
     (7.9 miles away)
    Languages Spoken:
    English

    Erin Fish is a primary care provider, practicing in Internal Medicine in Urbandale, Iowa. Dr. Fish is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses High Cholesterol, Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    MercyOne Ankeny Family Medicine

    800 East 1st Street, Suite 1700, 
    Ankeny, IA 
     (9.7 miles away)
    Languages Spoken:
    English

    Laura Abels is a primary care provider, practicing in Family Medicine in Ankeny, Iowa. Dr. Abels is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Spasticity, Type 2 Diabetes (T2D), Chronic Pain, and Glucocorticoid-Remediable Aldosteronism.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Nurse Practitioner | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Nurse Practitioner | Pediatrics

    MercyOne Ankeny Pediatrics Care

    800 East 1st Street, Suite 2200, 
    Ankeny, IA 
     (9.7 miles away)
    Languages Spoken:
    English

    Stephanie Sinclair is a Pediatrics specialist and a Nurse Practitioner practicing medicine in Ankeny, Iowa. Ms. Sinclair is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Croup, Developmental Dysphasia Familial, Herpangina, and Autism Spectrum Disorder.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics
    2901 86th St, 
    Urbandale, IA 
     (6.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Val Sheffield is a Medical Genetics provider practicing medicine in Urbandale, Iowa. Dr. Sheffield is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Bardet-Biedl Syndrome, Polydactyly, Ocular Hypertension (OHT), and Retinopathy Pigmentary Mental Retardation. Dr. Sheffield is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Office

    1601 NW 114th St, 
    Clive, IA 
     (8.2 miles away)
    Languages Spoken:
    English

    Jon Van Roekel is a Pediatrics provider practicing medicine in Clive, Iowa. Dr. Van Roekel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Croup, Delayed Growth, Diarrhea, and Viral Gastroenteritis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    UnityPoint Clinic

    6010 Mills Civic Pkwy, 
    West Des Moines, IA 
     (9.3 miles away)
    Languages Spoken:
    English

    Katherine Burns is a primary care provider, practicing in Internal Medicine in West Des Moines, Iowa. Dr. Burns is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Neurosarcoidosis, Sarcoidosis, Triple A Syndrome, Addison's Disease, and Endoscopy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Des Moines Eye Surgeons LLP

    5901 Westown Pkwy Ste 200, 
    West Des Moines, IA 
     (9.5 miles away)
    Languages Spoken:
    English

    Frederick Blodi is an Internal Medicine provider practicing medicine in West Des Moines, Iowa. Dr. Blodi is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Amblyopia, Cataract, Ehlers-Danlos Syndrome (EDS), and Late-Onset Retinal Degeneration.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Waggoner Pediatrics Of Central Iowa (Des Moines Pediatrics-West)

    2555 Berkshire Pkwy Ste A, 
    Clive, IA 
     (9.5 miles away)
    Languages Spoken:
    English

    Brian Waggoner is a Pediatrics provider practicing medicine in Clive, Iowa. Dr. Waggoner is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Obesity in Children, Croup, Diarrhea, and Scarlet Fever.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Mercyone Clinic Laboratory-Ankeny

    800 E 1st St Ste 1700, 
    Ankeny, IA 
     (9.7 miles away)
    Languages Spoken:
    English

    Jean Paul is a primary care provider, practicing in Family Medicine in Ankeny, Iowa. Dr. Paul is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Hypothyroidism.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine | Counselor
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine | Counselor

    MercyOne Waukee Family Medicine

    25 West Hickman Road, 
    Waukee, IA 
     (13.4 miles away)
    Languages Spoken:
    English

    Brianne Day is a primary care provider, practicing in Counselor and Family Medicine in Waukee, Iowa. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses High Cholesterol, Generalized Anxiety Disorder (GAD), Hypothyroidism, and Obesity in Children.

    Showing 1-20 of 21

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Des Moines, IA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Des Moines, IA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Des Moines, IA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Des Moines, IA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Des Moines, IA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Des Moines, IA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Des Moines, IA?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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